Observacions:
DM1-Hub aims to be the basis for the implementation of precision medicine aspects in Spain for the benefit of patients with Myotonic Dystrophy type 1 (DM1), prioritizing better diagnosis and optimization in the use of soon-to-be-available treatments. The DM1-Hub project brings together a group of 80 professionals in the areas of research and clinical monitoring of DM1. Together they form a multidisciplinary work team with extensive experience in this pathology at the research level, which includes predoctoral, postdoctoral and senior researchers, including renowned research groups in the field of rare neuromuscular diseases and DM1 in particular. Specifically, the team is made up of specialists in genomics, epigenetics, bioinformatics, biostatistics, proteomics, applied research and scientific dissemination. In turn, the team makes up an important network of around 70 health professionals (neurologists, neuropediatricians, neuropsychologists and nurses), in more than 40 hospitals in 8 different Autonomous Communities, who follow up with DM1 patients in their consultations. We are looking for a compromised and enthusiastic nurse for DM1-Hub project. He/she would interact with nurses and other health professionals around Spain that will be doing the same tasks in another Autonomous Communities. The project DM1-Hub is funded through a grant PMPER24/00007 from ISCIII for Research Projects on Rare Diseases, from the 2024 Call for Joint Missions of the Ministry of Health and the Ministry of Science, Innovation and Universities, under the PERTE for Vanguard Health and within the framework of the Recovery, Transformation and Resilience Plan.